An open letter:
You don’t have to remind me. I know I have Lupus. I know I am “suppose” to have limitations. But in the past 6 years, that is what I have been trying to prove to myself, and to make people understand that SLE patients are not contained by their illness.
I do experience stressful moments, and stressful people. It takes me more time to psych myself into a better state, but I am able to. I am my own psychologist.
I admit that there are times when I over exert myself. Physically and emotionally. I like to push myself, BUT I know when it is too much. I know my body. I have been living in it for 30 years.
I don’t complain about my joint pains, I don’t complain about pain. I am always present. I am always there. AND, I am always ready.
I run, I swim, I exercise. I can run 5 km without falling face flat. I am physically strong.
I may have diet restrictions but I never impose on anyone. I never required anyone to give me the food that I can eat. I am not a diva. I adjust, I am always grateful, I will eat what you serve me. I do not make a fuss, and I do not make demands.
I have lost 2 daughters. I have 2 angels in heaven. I am still smiling. You can still talk to me. Can you go through the same thing and still see the beauty of life?
You don’t even know half of the pain and hardships that I have gone through.
I don’t make excuses for myself. Why should you?
Please respect me and understand that I am a strong person.
Look at your life, and look at mine. We may have the same accomplishments. You may have more. But remember I am doing it all with Lupus, and I am still running the race.
I have Lupus, so what?