I have Lupus, so what?

An open letter:

You don’t have to remind me. I know I have Lupus. I know I am “suppose” to have limitations. But in the past 6 years, that is what I have been trying to prove to myself, and to make people understand that SLE patients are not contained by their illness.

I do experience stressful moments, and stressful people. It takes me more time to psych myself into a better state, but I am able to. I am my own psychologist.

I admit that there are times when I over exert myself. Physically and emotionally. I like to push myself, BUT I know when it is too much. I know my body. I have been living in it for 30 years.

I don’t complain about my joint pains, I don’t complain about pain. I am always present. I am always there. AND, I am always ready.

I run, I swim, I exercise. I can run 5 km without falling face flat. I am physically strong.

I may have diet restrictions but I never impose on anyone. I never required anyone to give me the food that I can eat. I am not a diva. I adjust, I am always grateful, I will eat what you serve me. I do not make a fuss, and I do not make demands.

I have lost 2 daughters. I have 2 angels in heaven. I am still smiling. You can still talk to me. Can you go through the same thing and still see the beauty of life?

You don’t even know half of the pain and hardships that I have gone through.

I don’t make excuses for myself. Why should you?

Please respect me and understand that I am a strong person.

Look at your life, and look at mine. We may have the same accomplishments. You may have more. But remember I am doing it all with Lupus, and I am still running the race.

Love, Ky


I have Lupus, so what?


About Ky Malupa

Housewife. Mother of 2 angels. Gluten free, dairy free, corn free baker and eater. SLE patient. Hair and Makeup Artist. Image Enhancement Instructor.
This entry was posted in The Lupus Warrior. Bookmark the permalink.

6 Responses to I have Lupus, so what?

  1. Bob Heys says:

    Kyla – I have know you since you were a little child and you have grown into a beautiful woman, and your faith, love, and devotion make you my favorite Angel on Earth. I love you. Unka Bob

  2. Ky Malupa says:

    I love you Unka Bob ❤

  3. Lorenita Maniquiz says:

    I know ur strong.i want your life to be longer and i believe you are a happy person.i recommend laminine food supplement .read about it.God bless you.love u

  4. Fernanda Lagoeiro says:

    I am also a Lúpus carrier and wrote a similar text (with the same subtltle lol) four years ago. But your’s stunning! I have never identified myself so deeply. Thank you for this and congratulations!

    • Ky Malupa says:

      Hello Fernanda! I am so sorry that I only see your reply now. Thank you for reading my post, I am glad you liked it! I hope all is well with your lupus. 🙂

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