Different and the same

I got an email 2 nights ago that a friend was in a coma in the ICU. She had just been diagnosed with SLE. Her lungs had water, her liver was damaged and her kidneys were failing. She was on life support, and was undergoing dialysis.

My mom has a friend with lupus who almost died while giving birth to her child, she was in a coma for a few days.. Her son came out strong and healthy.

I’ve met kids, 12, 14 years old, undergoing dialysis because of their SLE complications. They were smiling through their masks.

Yesterday morning, a lupus friend sent me a message saying that she had just gotten a hip replacement, at 24 years old.

I have my own complications with my lupus. Not all lupus patients have the anti ro and anti la antibodies, I do. They directly attack the baby in utero, and can cause neonatal death or a complete heart block. I have lost 2 daughters, and there is not one day I don’t think of them.

Every lupus patient is different, we all have different complications and we all fight different battles. But our hearts echo for the same desire, that one day everything will be OK.

I believe that prayers are wonderful gifts. Please take a moment to pray for all the sick people in the world, that they may continue to remember that God is holding their hand and He will never leave their side.. Because sometimes that is all we need, a little bit more faith to see us through..


About Ky Malupa

Housewife. Mother of 2 angels. Gluten free, dairy free, corn free baker and eater. SLE patient. Hair and Makeup Artist. Image Enhancement Instructor.
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